Membership Organizations

Working Together to Expand the Visibility of Skin Disease

The Coalition of Skin Diseases (CSD) advocates on behalf of individuals with skin diseases. The CSD supports basic scientific and clinical research, fosters physician and patient education, generates awareness of skin diseases, and unifies member organizations through the sharing of mutual concerns.

Allergy & Asthma Network

allergyandasthmanetwork.org

The mission of Allergy & Asthma Network is to end the needless death and suffering due to asthma, allergies, and…
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Beautifully Unblemished

beautifullyunblemished.com

Who we are Beautifully Unblemished Vitiligo Support Group, Inc. Mission To increase public awareness of Vitiligo and offer support services…
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Cicatricial Alopecia Research Foundation (CARF)

carfintl.org

The term “cicatricial alopecia” refers to a diverse group of rare disorders that destroy the hair follicle, replace it with…
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Cutaneous Lymphoma Foundation

clfoundation.org

Cutaneous lymphomas are types of non-Hodgkin’s lymphomas (NHL) that originate in the lymphocytes (white blood cells). Unlike most other types…
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Foundation for Ichthyosis & Related Skin Types (FIRST)

www.firstskinfoundation.org

Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin….
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Foundation for Sarcoidosis Research (FSR)

www.stopsarcoidosis.org

The mission of the Foundation for Sarcoidosis Research (FSR) is to find better treatments and potentially a cure for sarcoidosis. …
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Global Parents For Eczema Research

www.parentsforeczemaresearch.com

Our Mission To dramatically improve quality of life for children living with eczema by advancing research that fills critical knowledge…
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Gorlin Syndrome Alliance

www.gorlinsyndrome.org

About Gorlin Syndrome or Basal Cell Carcinoma Nevus Syndrome Gorlin Syndrome (GS) aka Basal Cell Carcinoma Nevus Syndrome is a…
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HS Foundation

www.hs-foundation.org

The mission of the HS Foundation is to improve the lives of people affected by HS through advocacy, education, and…
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International Hyperhidrosis Society

www.sweathelp.org

Hyperhidrosis is an idiopathic disorder of extreme, uncontrollable, episodic, and/or unexpected sweating beyond what’s “normal” or necessary to regulate temperature or…
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International Pemphigus & Pemphigoid Foundation

www.pemphigus.org

Pemphigus and Pemphigoid (P/P) are defined as a group of life-threatening autoimmune blistering disorders characterized by acantholysis resulting in the…
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National Alopecia Areata Foundation (NAAF)

www.naaf.org

What is alopecia areata? Whom does this disease affect? Alopecia areata is an autoimmune skin disease resulting in the loss…
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International Topical Steroid Awareness Network

www.itsan.org

About Topical Steroid Withdrawal Syndrome: Topical Steroid Withdrawal Syndrome (TSW Syndrome), also known as Topical Steroid Addiction (TSA) or Red…
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National Eczema Association

www.nationaleczema.org

Types of eczema Eczema is an umbrella term used to describe a group of medical conditions that cause the skin…
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National Foundation for Ectodermal Dysplasias (NFED)

www.nfed.org

What are Ectodermal Dysplasias? Ectodermal dysplasias are a diverse group of genetic disorders that involve defects of the hair, nails,…
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National Psoriasis Foundation

www.psoriasis.org

Psoriasis is not contagious.  Psoriasis is a chronic immune-mediated disease, which according to the Journal of Psoriasis and Psoriatic Arthritis,…
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Pachyonychia Congenita Project (PC Project)

www.pachyonychia.org

Pachyonychia Congenita (PC)Prounounced “Pack-e-o-nik-e-uh Kun-jen-i-ta” About Pachyonychia Congenita (PC): PC is a chronically disabling, ultra-rare autosomal dominant skin disorder caused…
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Nevus Outreach

A congenital melanocytic nevus, also referred to as “CMN,” is a birthmark that is caused by the excessive accumulation of…
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Vitiligo Support International

www.vitiligosupport.org

Non-Segmental Vitiligo (NSV) includes all types of vitiligo except segmental, such as focal vitiligo (pigment loss limited to one, or very few areas), acrofacial…
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XP Family Support Group

www.xpfamilysupport.org

The XP Family Support Group is dedicated to improving the quality of life of those affected with Xeroderma Pigmentosum through…
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American Academy of Dermatology

www.aad.org

The American Academy of Dermatology is the largest, most influential, and representative dermatology group in the United States. Find resources…
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Canadian Skin Patient Alliance

www.canadianskin.ca

Who we are: The Canadian Skin Patient Alliance (CSPA) is a national non-profit organization dedicated to advocate, educate and support…
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Derma Care Access Network

www.dermacareaccess.org

Who we are: Comprised of over 40 non-profit advocacy and professional organizations, The Derma Care Access Network (DCAN),  is an…
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Dermatology Nurses’ Association

www.dnanurse.org

Mission Statement: The Dermatology Nurses’ Association is a professional nursing organization comprised of a diverse group of individuals committed to…
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Global Vitiligo Foundation

globalvitiligofoundation.org

Vitiligo is an autoimmune skin disease causing loss of pigment from areas of the skin, resulting in irregular white spots…
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International Alliance of Dermatology Patient Organizations (IADPO)

www.globalskin.org

The International Alliance of Dermatology Patient Organizations (IADPO, also known as GlobalSkin) is a unique global alliance that is committed…
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The Pediatric Dermatology Research Alliance (PeDRA) is a nonprofit research organization driven by the mission to create, inspire, and sustain…
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Society for Investigative Dermatology (SID)

www.sidnet.org