The Coalition of Skin Diseases
Working to improve the lives of 84 million Americans living with dermatological conditions
Why We Exist
As the largest consortium of skin disease patient advocacy organizations in the United States, the efforts of the Coalition of Skin Diseases (CSD) aim to ensure that all Americans living with dermatological diseases and skin traumas receive the care they need to live healthy and productive lives.
Sharing Best Practices
Advocacy & Awareness
Research
Raising Awareness of the Impact of Skin Disease
We Take Advocating
for Patients Seriously
The CSD works to improve the lives of over 84 million Americans living with dermatological conditions by supporting member organizations in developing, building, and enhancing their current advocacy initiatives. We are also the conduit through which our members speak with one voice to policy-makers and regulators about the debilitating nature of dermatological diseases and barriers to access, treatment, and research.
84M
Americans Living with
a Skin Disease
37
Dermatological Related
Non-Profit Members
3000
Known Skin Diseases
$86B
Direct and Indirect Costs
Related to Skin Disease
Recent News &
Upcoming Events
CSD Hill Day
May 18, 2025
May 18-20, 2025 The CSD fly-in Capitol Hill Day is our coalition’s flagship annual event providing members, along with the…
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SID Annual Meeting
May 7, 2025
May 7-10, 2025 The Society for Investigative Dermatology (SID) Annual Meeting will take place in San Diego, California. The SID…
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CSD Development Day
March 8, 2025
March 8, 2025 The CSD will be hosting its Development Day and Annual Business Meeting on Saturday, March 8th, in…
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AAD Annual Meeting
March 7, 2025
March 7-11, 2025 The American Academy of Dermatology offers each Associate Member Organization of the CSD a maximum of (2)…
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Membership with the CSD
The CSD is a collective of patient groups, non-profit, and corporate entities which align with the coalition’s mission in advocating for dermatological patients. There are three membership opportunities:
Patient Group Members
Dermatological Patient Support Organizations that are tax-exempt with 501c3 status.
Professional Association Members
Entities that are tax-exempt and whose mission supports the goals of the CSD.
Corporate Members
Entities that are non-tax-exempt with a focus on those living with a skin disease.
What our Members are Saying
"Attending the Coalition of Skin Diseases Development Day was an invaluable experience. The sessions provided actionable insights on fundraising, and capacity building, tailored specifically for patient advocacy organizations. The opportunity to connect with other leaders in the rare and chronic skin disease space fostered meaningful collaborations that will strengthen our work for years to come. This event is a must for any organization looking to grow its impact and better serve its community."
Lauren Isbell
Executive Director, Nevus Outreach
"The CSD is an amazing organization that allows networking and meaningful collaboration on issues that cross organizations to empower the voice of the patient."
Becky Strong
Outreach Director, International Pemphigus and Pemphigoid Foundation
“Being a member of the Coalition of Skin Diseases has been an invaluable experience. It provides a supportive and collaborative space where we can connect, share knowledge, and learn from each other’s experiences. Through this network, we’ve been able to strengthen our advocacy efforts and amplify the voice of the patient communities we serve. The Coalition fosters growth, connection, and collective impact — empowering us to make a real difference for those affected by skin diseases."
Jessica Johnson
Director, Community Research & Engagement, National Eczema Association
"CSD membership provides our organization with connections with other patient organizations doing work in skin conditions where we can share our experiences, learn from each other to help support our organization's mission. The engagement in the annual member meeting is critical to connecting, learning and empowering us to keep going when sometimes it feels like we are alone in our challenges. CSD brings us together in many ways that are valuable to enabling our organization to grow and flourish."
Susan Thornton
CEO, Cutaneous Lymphoma Foundation
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