National Scleroderma Foundation

scleroderma.org

The National Scleroderma Foundation helps people living with scleroderma, their families and caregivers achieve a greater understanding of their disease, allowing them to create a care team and advocate for their own health. Our educational programs provide information and resources to thousands of people through webinars, literature, workshops, and a large-scale in person National Conference.  Our peer-led support groups provide individuals opportunities for emotional support, and connection with others who share this disease.

Scleroderma is a rare disease that affects connective tissue and the vascular system, producing excessive collagen that causes fibrosis in the skin (localized scleroderma) or in internal organs (systemic sclerosis). Early identification, with appropriate referral to specialists, is the best opportunity for improved outcomes in disability and survival.